Frequently Asked Questions

What will happen to the results of the study?

The results of the study may be published in scientific or medical journals and presented at conferences. Copies of the published results will be available to you on request after the data collection is finished and the analyses have been performed. Your name will not be linked to the publications in any way.

Who do I contact if I need further information?

For queries regarding the study and enrolment, please contact Francesca at f.mcdonagh4@universityofgalway.ie

For queries regarding Data Protection and GDPR, please contact the University of Galway Data Protection Officer at dataprotection@universityofgalway.ie or the HSE West Deputy Data Protection Officer at ddpo.west@hse.ie or on (091) 775819.

For queries regarding your rights as a research study participant, please contact the Ethics Committee (Galway University Hospitals Clinical Research Ethics Committee) on (091) 775 022.

Data privacy and authorization to collect, use, and disclose personal information

Data collected will be used for research analysis and will be retained for a maximum of 7 years.

Your name and personal information will not be given to anyone who is not involved in the study. Your personal information collected as part of this study, will be made available to study staff at the site. Your study information will be identified in the database by a code and not by your name. The study staff will keep a record of which code belongs to you.

You can withdraw your consent for the study and/or further follow up studies, without withdrawing consent for handling your data. You may also withdraw consent to the handling of your data but please note previous data processing, before this, is legally covered by your original consent. After this withdrawal, no further data will be collected from you.